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We donate 1% of the sales price of each Foondiert® pack to the NCL Foundation for a future without childhood dementia
Dementia is a disease that we associate with getting older. However, most people are not aware that children can also develop dementia. Around 700 children in Germany and around 70,000 children worldwide suffer from the incurable and fatal neuronal ceroid lipofucinosis (NCL), better known as childhood dementia. In the juvenile form of childhood dementia, known as CLN3, children begin to lose their sight at primary school age until they become completely blind within one to three years. What they have already learned is forgotten and cognitive and motor skills continue to decline in a gradual process. In addition to losing the ability to speak and move around independently, the children are plagued by epileptic seizures until they succumb to the disease between the ages of 25 and 30.
The non-profit NCL Foundation initiates, finances and supports research projects and collaborations worldwide to close research gaps - with the aim of developing an effective therapy. The foundation also provides important educational work for doctors and raises public awareness of the disease.
Since 2006, the NCL Foundation, which is financed entirely through donations, has been the holder of the DZI donation seal.
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